Special Needs spotlight: Anna Rose Scurria
Meet the Scurria family (again), Dad-John, Mom-Krista (physical therapist), Joshua 12, and little Anna Rose who is 9. Like a typical third grader [Oak Grove Primary], she enjoys playing, hanging out with friends, and technology. Anna Rose has Spinal Muscular Atrophy type 2 and is confined to a power wheelchair, just like her older brother, Joshua. SMA is the leading genetic cause of death in children under the age of 2, and affects muscles of voluntary control like sitting, rolling, crawling, walking, eating, etc. One in 40 people carry the gene. Anna Rose, “commando,” crawled until about 9 months of age. She walked briefly with a walker - just a few steps - when she started on an experimental medication a few years ago. Her family is very hopeful for a cure in the near future!
But playing can be a challenge. Sitting on the sidelines and watching the other kids play is where you’ll find Anna Rose, as typical playgrounds, including the ones at school, are not accessible to her. Juggling normal day-to-day activities like school, homework and therapy sessions makes traveling a long way to one of the few playgrounds she could participate in, almost impossible. Kidz Kove will provide that play-space that Anna Rose can enjoy with her brother and friends.
Project Kidz Kove is making amazing leaps and bounds toward their goal of building an all accessible playground in Gonzales. More than 20,000 children in Ascension and the surrounding parishes will benefit from this ADA approved play space. Not only for children with physical disabilities, this park covers it all, complete with educational panels and quiet areas for children that are easily over stimulated. Donations may be made to Project Kidz Kove at: P.O. Box 179, Brittany, LA 70718, or for more information, please call 644-5273.
This profile proudly sponsored by:
“Kamal’s Kafe is proud to sponsor the new, universally accessible park which will soon be a welcome addition to our parish. Every child deserves a place to play that is safe and functional, and this park will provide just that. Our wish is that everyone in the parish embrace this much anticipated addition to the area, and support all children in Ascension, regardless of mental or physical ability. We welcome Kidz Kove Park with open arms.” Kamal Zaher